Additional Resources
Patient education links
Adult Congenital Heart Association
The ACHA seeks to improve the quality of life and extend the lives of adults with congenital heart defects through education, outreach, advocacy, and promotion of research.
American Heart Association: Congenital Cardiovascular Defects
This section of the AHA's extremely wide-ranging site describes congenital cardiac conditions, procedures, and possible complications.
Canadian Adult Congenital Heart Network
Designed to provide information to adult patients with congenital heart disease and their care providers, this site features resource articles, a glossary of medical terms, a message center, and a detailed section on managing heart defects.
Congenital Heart Information Network
In addition to offering reliable information, support services and resources, the CHIN site features CarePages for its members and site visitors. CarePages are free, private, and personalized web pages that help patients and families stay in contact before, during, and after a hospital stay. The service also provides an efficient way for friends and loved ones to respond with messages of support.
Sponsored by the International Society for Minimally Invasive Cardiothoracic Surgery, this site contains surgical video; original scientific reports; and collective reviews, case reports, and discussion forums by prominent surgeons.
International Society for Adult Congenital Heart Disease
Dedicated to the advancement of knowledge and training in medical disciplines pertinent to congenital heart disease in adults, this society's website includes a comprehensive resource of information for patients and family.
National Heart, Lung, and Blood Institute
The NHLBI plans, conducts, fosters, and supports an integrated and coordinated program of basic research, clinical investigations and trials, observational studies, and demonstration and education projects. The institute's site features a wide variety of information for the general public, prospective patients, health professionals, and researchers.
A multi-faceted and inclusive site with separate sections and resources for children with congenital heart disease, their parents, and medical practitioners.
