Rare Bleeding Disorders
Care and Treatment

The Emory Approach to Other Rare Bleeding Disorders

Emory Multidisciplinary Bleeding Disorders Clinic is recognized as Georgia’s only comprehensive treatment center for our quality care, innovative research, extensive educational opportunities and support programs. Emory’s care team of nationally and internationally recognized practitioners have specialized training and expertise in providing personalized rare bleeding disorders care for your needs.

The Rare Coagulation Disorders Resource Room provides current and searchable information on the basic science, clinical management, available laboratory and genetic testing, clinical trials and global research initiatives for very rare and heterogeneous coagulation disorders. This dynamic, open-access website was developed through a collaboration of the international RBDD Registry, the Indiana Hemophilia & Thrombosis Center and the Rare Coagulation Disorders Subcommittee of the National Bleeding Disorders Foundation (NBDF), a group appointed by NBDF’s Medical and Scientific Advisory Council.


What Are Rare Bleeding Disorders?

Although most bleeding disorders are not common, rare bleeding disorders are even more unusual and make up only about 3-5% of all bleeding disorders. Rare bleeding disorders can be deficiencies of other clotting factors like factor V, factor X, factor XI, and factor XIII as well as deficiencies of fibrinogen.


Comprehensive Rare Bleeding Disorder Care

In addition to our nationally recognized care team, leading researchers and innovative treatments, Emory provides a wide range of specialized services. Our specialists—from physical therapists to counselors and more—are also trained in the treatment needs of people living with rare bleeding disorders. This unique level of focus makes sure you get the best possible care and advice.

Our approach to treating rare bleeding disorders is highly individualized. We look at your specific disease subtype, lifestyle, bleeding history and treatment and risk factors to develop a unique plan for you. In careful consultation with your medical team, we empower you to live a full life as you manage your condition.


Empowering You To Take Ownership of Your Treatment

We don’t just treat rare bleeding disorders, we educate you about the condition and support you and your family so you can live your best life despite your diagnosis. 

Supporting your lifestyle

At Emory, we support our patients through in-depth assistance with insurance, travel, major life transitions, and everything in between. Our multidisciplinary team is ready to help.

Equipping you for independence

We believe in empowering our patients for an independent lifestyle. Learn about self-care and at-home treatment. Find out how to travel safely and even receive counseling for how your condition may impact your job or home life.

At Emory, we know that the best care starts with the patient-provider partnership. Supporting your independence is a critical part of your individual treatment plan.


Research and Clinical Trials

The Bleeding Disorders Research Program at Emory is focused on advancing new therapies, evaluating novel aspects in the care of rare bleeding disorders, and creating new knowledge about the evolving needs of patients with these disorders.

The program includes clinical trials as well as translational and basic research in bleeding disorders. Our patients have the option to participate in cutting-edge research and contribute to scientific and medical knowledge in a variety of innovative ways that could not only help them but also help the larger community of affected patients.


Make an Appointment with Emory Bleeding Disorders Clinic

To make an appointment, please call 404-778-7062, Monday – Friday, 8:00 am to 4:30 pm.


Make an Appointment
To make an appointment, please call 404-778-7062.