If you’re an adult living with congenital heart disease, understanding your condition is key to managing it.
At Emory Healthcare, we do more than treat your condition. We provide education, support and lifelong care to help you live well at every stage of life. Together, we’ll create a care plan that reflects your goals and helps you reach them.
Congenital heart disease (CHD) refers to structural heart conditions present at birth. Also called congenital heart defects, these conditions can affect the heart’s chambers, valves or blood vessels and impact blood flow. CHD is a lifelong condition. While many people are diagnosed in childhood, some are not identified until their teens or adulthood. When managed in adults, it’s called adult congenital heart disease (ACHD).
Patients with genetic syndromes at increased risk for associated congenital heart disease include:
Symptoms vary based on your age, condition, and overall health.
Common symptoms include:
Most people with congenital heart disease are diagnosed during infancy or childhood, but a significant number of people are first diagnosed in adulthood. Your congenital heart disease specialty cardiologist will use a combination of tests to evaluate your heart’s structure, blood flow and heart rhythm.
Common tests include:
Congenital heart disease is the most common birth defect, and thanks to advances in care and improved survival, today more than 2 million adults are living with ACHD in the United States.
No. Adult congenital heart disease is present at birth, even if it isn’t diagnosed until later in life. Other types of heart disease develop over time due to factors such as aging, smoking, obesity, high blood pressure or high cholesterol.
Not always. Some conditions can be managed with medication or minimally invasive procedures.
If you need surgery or a heart transplant, our team performs hundreds of procedures each year with outcomes that rank among the best in the nation. Learn more about treatment and management options for ACHD.
Some forms of congenital heart disease can run in families. Genetic testing can help assess your risk before pregnancy.
Our Cardiovascular Genetics team can identify inherited conditions and create a personalized care plan before, during and after pregnancy. Learn more about cardiovascular genetic testing and counseling.
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